Why might early intervention (EI) help?
Children learn by watching, imitating, and playing with others. Young children with symptoms of autism spectrum disorders (ASDs) often lack some of these developmental skills, and they need to learn them. The goal of EI is to help young children gain developmental skills and to teach families some specific skills to meet their child's unique needs. It is important to get help for your child as soon as possible. The earlier a child gets into EI, the better the outcome can be.
What is the EI Program?
The EI Program for Infants and Toddlers with Disabilities (Part C of the Individuals with Disabilities Education Act) is a federal grant program that helps states run a complete, statewide program of EI services. These services are for children with disabilities from birth until their third birthday and their families. Early intervention services are also required for families of military personnel living abroad and for residents of US territories.
How can we find out if our child can receive EI services?
All states have an EI program. There is a difference between diagnosis and eligibility. Your child does not have to have a diagnosis of developmental delay or ASD to be eligible for EI services. However, in some states you may have access to more specialized services if your child is formally diagnosed with an ASD. Eligibility differs from state to state. How your state defines developmental delay will determine what EI services, if any, your child can get through the state's EI program. For example, in some states, children at risk for delays because of a medical diagnosis may be eligible for intervention even before developmental delays appear. You should contact your child's pediatrician, state health department, or local school district to get contact numbers for your state's EI program to determine if your child is eligible. In addition, the National Early Childhood Technical Assistance Center has a list of EI program coordinators for each state. You can find this list on its Web site at www.nectac.org.
Who can refer a child to EI services?
Anyone, including a physician, parent, or child care provider, can refer a child to EI services. Referrals can be made without a diagnosis. This means they do not have to know the reason for your child's developmental difficulties, just that there is an issue. Your state's EI program will evaluate or test your child free of charge to find out if she qualifies to get into the program. The earlier a child gets into EI, the better the outcome can be.
What services are provided through an EI program?
A team of several types of specialists will test your child to find out what services he needs. The team will write an Individualized Family Service Program (IFSP) to help work toward the best outcomes. The state EI program will also assign a service coordinator to work with your family to help coordinate services. Your child will receive services in a place he knows, such as home or child care, when possible.
What is an IFSP?
An IFSP guides EI for children with disabilities and their families. It explains the services needed to improve a child's development and to help the family support the child. Throughout the IFSP process, family members and service providers should work as a team to plan, carry out, and assess services to meet the child's and family's needs.
An IFSP must include
The child's current developmental levels
Family strengths and needs
Ways to improve the child's development
Key outcomes expected
Specific services that the child and family will receive
Goal dates for starting and ending services
Name of the service coordinator in charge of helping the family carry out the plan
Steps to help the child and family with changing over to school services at age 3 years if the child still has developmental needs requiring preschool therapy or instruction (ie, transitioning)
Payment for EI services varies by state. Some states give services at no charge to parents or caregivers. Other states bill insurance or charge for services depending on the family's income. Some services will be given even if a family cannot pay. All states must give at least some services free of charge, including
Looking for (screening) young children who have developmental and behavioral problems (Child Find: www.childfindidea.org)
Testing children in areas of concern on screening to determine what services should be provided
Developing, reviewing, and evaluating the IFSP
American Academy of Pediatrics Committee on Children With Disabilities. The pediatrician's role in development and implementation of an Individual Education Plan (IEP) and/ or an Individual Family Service Plan (IFSP). Pediatrics.1999;104(1):124-127
American Academy of Pediatrics HealthyChildren.org: www.HealthyChildren.org
National Dissemination Center for Children with Disabilities: www.nichcy.org
National Early Childhood Technical Assistance Center: www.nectac.org
Parent Advocacy Coalition for Educational Rights (PACER) Center: www.pacer.org
Family handout from Autism: Caring for Children With Autism Spectrum Disorders: A Resource Toolkit for Clinicians, 2nd Edition, developed by the American Academy of Pediatrics (AAP) Council on Children With Disabilities Autism Subcommittee (ASC).